Responding to Mental Health & Substance Use Facility Denials
If you or a loved one has been denied access to treatment because of a bleeding disorder (BD), don’t give up! BD SUMHAC has tools to help get you the treatment you need and deserve.
A denial because of BD is not the end of the story. It is the beginning of the advocacy.
After a denial, first, contact your BD treatment team and share the BD SUMHAC Provider Toolkit with them. BD SUMHAC is available to support your treatment team as they advocate for your access to treatment. If the BD provider does not feel comfortable or able to advocate on your behalf, please contact the BD SUMHAC advocates at the National Hemophilia Foundation or the Hemophilia Federation of America.
Steps for Responding to Behavioral Health Facility Denials:
Confirm that the denial was due to your bleeding disorder
Collect information about the details of the denial
Share your story with your BD treatment team and encourage them to contact BD SUMHAC
Send a letter to the facility requesting “reasonable accommodations”
File a discrimination complaint with the Federal Department of Health & Human Services Office of Civil Rights
Contact your state’s ombudsman or Office of the Inspector General
Consider alternatives to inpatient/residential treatment
Printable Quick Start Resource Guides
In this webpage, the term “behavioral health” includes both mental health and substance use disorder.