Coalition Members

Core Team Members

The coalition’s core team members are regularly involved in the development, review, and production of coalition materials. They also present on behalf of the coalition to external stakeholders.

• Kate Reinhalter Bazinsky, MPH: Chair and Co-Founder, Bleeding Disorders Substance Use and Mental Health Access Coalition, Community Member, New England Hemophilia Association 

• Jacqueline Bottacari, LCSW: Licensed Clinical Social Worker, Yale Center for Bleeding and Clotting Disorders

• Ryan Faden: Director, Patient Access, National Bleeding Disorders Foundation

• Jen Feldman, RN, MSN: Co-Founder of BD SUMHAC, Nurse Coordinator, University of Massachusetts Memorial Hemophilia Treatment Center 

• Shanna Garcia, MBA: Director of Development, Texas Central Bleeding Disorders

• Mark Hobraczk: BD SUMHAC Advocate & Senior Manager for Policy, Hemophilia Federation of America

• Lynne Kinst: Executive Director, Hemophilia Council of California

• Lucy Ramirez, LCSW: Social Worker, Rush University Medical Center Hemophilia Treatment Center

• Nathan Schaefer, MSW: Senior Vice President of Public Policy & Access, National Bleeding Disorders Foundation

• Gillian Schultz: Director of Programs, Bleeding Disorders Foundation of North Carolina

• Miranda Solem, MA, LADC:  Director, Community & Residential Mental & Chemical Health Services, Bleeding Disorders Alliance of North Dakota 

• Joanne Fadale Wagner, LICSW: Social Work Care Manager, Dartmouth Health Hemophilia Treatment Center 

Participating Members

The coalition’s participating members are passionate about the mission, participate in the coalition’s work, and contribute to the extent that they are able. 

• Renee Albert, Community Member, New England Hemophilia Association 

• Jennifer Banks, Community Member, New England Hemophilia Association 

• Lissa Blanchard, LICSW, Mental Health Professional Coordinator, New England Hemophilia Association Mental Health Professional Coordinator 

• Leslie Brady, Senior Policy Advisor, Artemis Policy Group

• Melissa Compton, Executive Director, Lone Star Bleeding Disorders Foundation; Co-Coordinator, Texas Bleeding Disorders Coalition

• Sarah Deason, MBA, MSW Intern, Clinical Case Manager II, University of Florida Hemophilia and Hemostasis Treatment Center

• Michael DeGrandpre, Community Member / Volunteer, New England Hemophilia Association 

• Alissa DeJonge, Community Member, New England Hemophilia Association 

• Matt Delaney, Government Relations Specialist, National Bleeding Disorders Foundation

• Marla Feinstein, Co-Founder of BD SUMHAC

• Valencia Firmin, LMSW, Outreach Social Worker, Hemophilia of Georgia

• Josie Gamez, Government Relations Manager, National Bleeding Disorders Foundation

• Miriam Goldstein, Community Member, Founding Member of BD SUMHAC

• Jessica Graham, Coalition Coordinator, New York State Bleeding Disorders Coalition

• Johanna Gray, Principal, Artemis Policy Group

• Jeremy Griffin, Executive Director, New York City Hemophilia Chapter

• Ann Marie Minichiello: Massachusetts State Lead, New England Bleeding Disorders Advocacy Coalition

• Cindy Morales Guzman, Community Member (Mom); Council Board Member, Hemophilia Council of California; Member, Nevada National Hemophilia Foundation Chapter; Volunteer, Hemophilia Foundation of Northern California; Volunteer, Hemophilia Foundation of Southern California

• Julie Jones,  Executive Director, Texas Central Bleeding Disorders, Co-Coordinator, Texas Bleeding Disorders Coalition

• Leslie Larson, LCSW Maine Health; Social Worker, Maine Bleeding Disorders Center

• Collin Lynch, Community Member

• Ziva Mann, Massachusetts State Lead, New England Bleeding Disorders Advocacy Coalition; Board Member, National Hemophilia Foundation 

• Shai Mann-Robinson, Computer Scientist, Community Member, New England Hemophilia Association  

• Nick McRae, Board Member of Hemophilia Alliance of Maine, Maine State Lead with the New England Bleeding Disorders Advocacy Coalition

• Carolyn Miazga, Board Member, New England Hemophilia Association 

• Jim Mueller, Community Member

• Matt Pace, Community Member, Licensed Marriage and Family Therapist

• Rich Pezzillo, Executive Director, New England Hemophilia Association 

• Kim Phelan, Chief Operating Officer, The Coalition for Hemophilia B

• Mark Reding, Director, Center for Bleeding and Clotting Disorders at University of Minnesota Medical Center in Minneapolis

• Bill Robie, Director, State Government Relations, National Bleeding Disorders Foundation

• Penni J Smith, MPA, BSN, RN-BC, Inherited Bleeding Disorders Nurse Navigator and Program Coordinator, Utah Center for Bleeding and Clotting Disorders

• Mosi Williams, LCSW, MSW, Social Worker, UCSF Benioff Children's Hospitals

• Amy K. Wilson, Clinical Social Worker, M Health Fairview’s Center for Bleeding & Clotting Disorders

• Joe Zamboni, Advocacy Coordinator, New England Bleeding Disorders Advocacy Coalition

• Mark Zatyrka,* Community Member, New England Hemophilia Association

State Advocacy Team Members

States Participating in the BD SUMHAC State Advocacy Program: 

• Michigan

  • Dave Rushlow, Munson Medical Center Northern Regional Bleeding Disorders Center

  • Zach Ryan, Hemophilia Foundation of Michigan

  • Kaite Scott, LLMSW, Social Worker, Hemophilia Foundation of Michigan Program Social Worker

• Minnesota

  • Justin Nelson-Deering, MHA, CPhT, Children’s Minnesota Center for Bleeding and Clotting Disorders

  • Miranda Solem, Behavioral Health Director, Licensed Alcohol and Drug Counselor

• Montana

  • Brad Benne, Rocky Mountain Hemophilia & Bleeding Disorders Association

  • Bryn Dunham, LCSW, Clinical Social Worker, University of Colorado HTC

  • Dr. Emily Wheat. PhD, Psychology University of Colorado HTC

• North Carolina

  • Melissa Cruz, Family Nurse Practitioner 

  • Robin Gardner, MSW, St. Jude Affiliate Clinic at Novant Health Hemby Children’s Hospital

  • Matt Pace, Community Member, Licensed Marriage and Family Therapist

  • Brianna Reed, Social Worker, Atrium Health Wake Forest Baptist HTC 

  • Gillian Schultz, Director of Programs, Bleeding Disorders Foundation of North Carolina

  • Genevieve Skinner, Advocacy Director, Bleeding Disorders Foundation of North Carolina

  • Megan Stewart, Social Worker, HTC at Atrium Health Levine Children’s

  • Rebecca Taylor, MD, MA, Child and Adolescent Psychiatrist, Psychiatrist

• Texas

  • Melissa Compton, Lone Star Bleeding Disorders Foundation

  • Sabrina Farina, Social Worker, Gulf States Hemophilia Treatment Center

  • Shanna Garcia, Director of Development, Texas Central Bleeding Disorders

  • Julie Jones, Executive Director, Texas Central Bleeding Disorders

BD SUMHAC Legacy State Teams: 

• California

  • Lynne Kinst, Executive Director, Hemophilia Council of California

  • Mosi Williams, Social Worker, UCSF Benioff Children's Hospitals

• Massachusetts

  • Ziva Mann, Community Member

  • Ann Marie Minichiello, Community Member

  • Jen Feldman, RN, MSN, Co-Founder of BD SUMHAC, Nurse Coordinator, University of Massachusetts Memorial Hemophilia Treatment Center 

• Connecticut

  • Jennifer Banks, Community Member, New England Hemophilia Association 

  • Jacqueline Bottacari, LCSW: Licensed Clinical Social Worker, Yale Center for Bleeding and Clotting Disorders

  • Alissa DeJonge, Community Member, New England Hemophilia Association 

  • Mark Zatyrka,* Community Member, New England Hemophilia Association

• New York

  • Jessica Graham, Coalition Coordinator, New York State Bleeding Disorders Coalition

  • Jeremy Griffin, Executive Director, New York City Hemophilia Chapter

*While employed by a company that sells products or services to bleeding disorders community, this individual is also a community member. Their involvement in the coalition is strictly as a lived experience expert.