May 2025 E-Newsletter: Did you know…?

Authored by: The BD SUMHAC Team


Did you know...? 🏛️🇪🇸
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Spring is finally here…

…and we’ve got lots to share!


March and April were particularly busy months for BD SUMHAC. Our team attended NBDF’s Washington Days, educated substance use facilities in Minnesota with the help of the state’s Department of Human Services, and recruited five new non-bleeding disorder patient communities to join our effort.


In our last e-newsletter, we included a call-to-action for HTC providers to complete our HTC Provider Survey. We are so grateful to the 73 Hemophilia Treatment Center (HTC) providers who responded, helping us assess the impact of our work and identify additional areas for advocacy. We are currently analyzing the data and are excited to share the results soon.


Thank you for reading! Together, we’re improving access to inpatient and residential behavioral health facilities for people with bleeding disorders and making a real difference in our community.

Since the inception of BD SUMHAC, we have believed that patient communities beyond bleeding disorders are also being denied access to inpatient and residential mental health and substance use treatment.

This year, we have made identifying these partner communities a priority. We are thrilled that AiArthritis, the American Diabetes Association, the Immune Deficiency Foundation, the Infusion Access Foundation, and Looms for Lupus have agreed to lend their voices to this work. Our goal is to create a healthcare system that truly welcomes, supports, and cares for everyone.

Check out the statement of support signed by our partners in access.

If you have connections with a non-bleeding disorder organization that might be interested in signing the statement, please contact us at info@bdsumhac.org.

Each year, Washington Days is hosted by the National Bleeding Disorders Foundation, bringing together advocates from across the country to push for federal funding and better access to care for people with bleeding disorders.


This year’s event took place March 5–7. BD SUMHAC’s Chair, Kate Bazinsky, members of the Wisconsin State Advocacy Team, and other BD SUMHAC team members joined together on Capitol Hill to advocate for the bleeding disorders community. (See pictures below!)


Washington Days is a key opportunity for advocates to meet with legislators and other decision-makers who shape policies affecting access to care. This year, NBDF advocates asked members of Congress to:


  1. Oppose cuts to programs that support the bleeding disorders community within the Centers for Disease Control and Prevention (CDC), the Health Resources and Services Administration (HRSA), and the National Institutes of Health (NIH).


  2. Oppose cuts to Medicaid, which provides access to health care for one-third of the bleeding disorders community.


  3. Support the HELP Copays Act to ensure that co-pay assistance counts toward patients' deductibles so people with bleeding disorders don’t face unaffordable out-of-pocket costs.


We’re proud to have participated again this year and look forward to continuing our advocacy.

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Visit our social media channels, share and invite others to follow!

BD SUMHAC appreciates the generous support of the following organizations. We are grateful for these sponsors and our many other supporters!

If you have questions about BD SUMHAC, the information on this website, or would like to support this work, please contact:

  • Kate Bazinsky, Chair, Bleeding Disorders Substance Use & Mental Health Access Coalition

    info@bdsumhac.org

Get involved!

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From Vision to Victory: BD SUMHAC’s Year-in-Review!