Behavioral-health and substance-use treatment programs sometimes worry about storing specialty medications like clotting factor or other bleeding-disorder treatments. These medicines can be expensive, refrigerated, or require supplies that staff don’t usually handle.

You can reassure them that facilities don’t need to manage or administer these medications on their own. They just need to provide safe, secure storage and allow access when it’s time for treatment.

Your bleeding disorder treatment team can explain what the medication requires, provide written instructions, and help the facility set up a simple plan that works within its policies.

Typically, storage needs include:

• A small amount of refrigerator space (if required by the product)

• A secure place where the medication and supplies can be kept safe

• Access for the patient or designated nurse to retrieve medication on treatment days

• A private, clean space where the infusion or injection can take place

Most facilities find these steps straightforward once they understand that the medication is already prepared, pre-dosed, and handled safely by the patient or their care team.

Here are some examples you can use when discussing medication storage with a facility:

• “I understand that storing bleeding-disorder medication might be new for your team. My medication just needs to be kept in a secure location and, if it requires refrigeration, in a regular fridge. My treatment team can provide instructions.”

• “You don’t need to mix or prepare anything. The medication will be in pre-packaged doses, and either I or a trained person will give it.”

• “My treatment team can tell you exactly how it should be stored and when it needs to be used.”

• “If refrigeration space is limited, my team can help you find a safe temporary option or coordinate deliveries through my specialty pharmacy.”

• “All you need to do is keep it secure and allow access for me (or the nurse) on infusion days.”

If you are a parent or caregiver, you could say:

• “We just need a secure place to store my child’s factor and a private space for them or a nurse to give it. Their treatment team can send you simple written storage instructions.”

To help the facility feel comfortable with storage and handling, you can share written guidance or short educational materials from your treatment team or pharmacy.

Suggested materials:

• Medication package insert or product storage instructions

• Written guidance from your bleeding disorder treatment team

• Information sheet from your specialty pharmacy

• Sample medication storage plan

Example email language:

Subject: Safe Storage of Bleeding-Disorder Medication for [Your / Patient’s Name]

Dear [Name or Admissions Team],

Thank you for discussing [my / my family member’s] admission. I wanted to share some information to help your staff feel comfortable storing the medication used to manage the bleeding disorder.

These medications are specialty products that are handled safely every day in community settings. They simply need to be kept in a secure place, and in some cases, refrigerated. My bleeding disorder treatment team can provide written storage instructions and is happy to speak directly with your staff if that would be helpful.

The facility doesn’t need to mix or prepare anything. The medication will come pre-packaged and ready for use. Oversight just means keeping it secure and allowing access for me (or a trained nurse) on treatment days.

Please let me know what questions your team has—I can connect you with my treatment team or pharmacy for details.

Warm regards,
[Your Name]
[Your Phone / Email]
(optional) [Name and contact of bleeding disorder treatment-team provider]