Patient Competency to Self-Administer Infusions or Injections
IF THE FACILITY IS CONCERNED ABOUT
Behavioral health and substance use disorder facilities may have limited or no prior experience working with individuals who self-infuse clotting factor or self-inject other medications. In these situations, education and reassurance from the bleeding disorder treatment team may be necessary to support the facility’s understanding and confidence in the process.
Important Information:
-
Laws and regulations regarding self-administration of medication vary significantly by state. Some states prohibit individuals from self-administering medication in certain types of behavioral health settings, while others grant facilities the discretion to determine whether self-administration is appropriate. In several states, facilities are required to obtain written documentation verifying that an individual is capable of safely self-infusing or self-injecting their medication.
BD SUMHAC has compiled information on relevant laws and policies in the states that participated in its State Advocacy Program.
For more information about these states, [click here]. -
Before discussing self-infusion with a facility, the bleeding disorder treatment team must first assess whether the individual—who may typically self-infuse independently—is currently able to do so safely in the context of acute mental health and/or substance use concerns. This determination should be made collaboratively by the bleeding disorder treatment team, the behavioral health provider, and the person with a bleeding disorder.
From the bleeding disorder perspective, the treatment team may consider the person with a bleeding disorder’s ability to:
Read and understand medication labels (e.g., dosage in units or milligrams),
Check expiration dates,
Perform hand hygiene,
Reconstitute or mix the medication correctly,
Identify and respond to particulate matter or discoloration in the medication,
Clean the infusion or injection site,
Remove air from the syringe or tubing,
Access a vein or subcutaneous site safely,
Administer the medication correctly,
Dispose of sharps and medical waste appropriately, and
Accurately document the infusion or injection.
Addressing the Facility:
-
Talking Points for Facilities Regarding Self-Infusion
"[Insert patient name] is fully competent to self-administer their medication from a bleeding disorders perspective."
"My patient has been independent with [his/her/their] self-infusions since age [insert age] and self-administers regularly in community settings without any medical oversight."
"I would be happy to provide a letter confirming [insert patient name]’s ability to self-administer their medication from a bleeding disorders perspective."
"However, it will be important for your team to assess whether [insert patient name] is currently able to safely self-administer in the context of this [mental health and/or substance use] crisis. Factors to consider in this assessment include:
[Insert patient name]’s current mental state (e.g., psychosis, delusions, agitation);
Whether [he/she/they] has expressed any intent to use bleeding disorder supplies to harm self or others;
Demonstrated ability to engage in safe behaviors;
Willingness and desire to self-infuse; and
Whether the use of needles could be triggering in the current context."
"If your team determines that [insert patient name] is capable of self-administering from a behavioral health perspective, the facility will need to provide staff oversight during the infusion. This is to ensure that:
The medication is administered exactly as directed by the bleeding disorder treatment team, and
Supplies are used only for their intended medical purpose."
"I would be happy to provide more detailed information about the infusion process or send you a video so your staff can be familiar with what to expect."
“If your team determines that [insert patient name] is not capable of self-administering from a behavioral health perspective, then we will need to identify a trained individual who is capable of administering the medication to him/her/them. I am happy to work with you to identify an appropriate individual.”
-
A letter to the facility that will reassure them that the individual is stable and capable of self-infusing from a bleeding disorders perspective. You can download this file and edit it for this purpose.
Excerpt from MASAC Document #289: This provides information about infusions for people with bleeding disorders from national bleeding disorders experts.
“How to give factor by peripheral infusion:” video from Minnesota Children’s
“How to give a subcutaneous injection:” video from Minnesota Children’s
Responding to Facility Concerns:
Back to: